It may not be easy to love someone so ill but if you are a person who does love someone with a chronic illness you are already a star.
It is easy to love someone but to love someone who is suffering from rare chronic invisible illnesses is tough, scary, heart breaking, stressful and hard. It takes real dedication to love someone who is ill.
A person who loves someone with a chronic illness has to have dedication, patience and determination.
Being there for that person who is ill does not mean just seeing them now and then. Really being there for that person is to listen to them, hold them when they are in pain when nothing else is helping, taking them to hospital unplanned in the middle of the night, holding their hand and sitting for hours on end in hospital so they know they are not alone and do not have to face it alone, being and advocate for that person when they cannot speak or cannot remember everything, sticking up for that person when they are challenged by ignorant medical staff, correcting medical staff when they do wrong, learning and gaining knowledge on that person’s illness so you know everything about it even if you cannot be bothered, driving that person all over town to find an open pharmacy and last minute for emergency medications, remembering all of that person’s appointments because 99% of the time they won’t remember, cancelling things last minute when they become ill.
Loving them for who they are, they may not be able to work or go to school or even go out with friends. Knowing and understanding that even the smallest things are a massive task to them. Not judging them, just being there for them and reassuring them it will all be ok. Helping them carry things that seem light to you because you know they won’t be able to. Knowing that person inside out and recognising the signs when they are becoming worse. Laughing and making light of situations to take their minds of things.
If you are a person who loves and takes care of a person with a chronic illness then you are not just their carer, you are their friend, doctor, nurse, taxi driver, ambulance, counsellor, guardian angel, advocate and much more…
It IS hard and it IS tough but the care and love you give to that person means the world to them.
Whether you are their mother, father, husband, wife, son, daughter or friend you are amazing for what you do and how you handle caring for and loving that person. It is not an easy job but you may be all that person has when the superficial people have given up. The love that person has for you is stronger than anything you will ever know.
Living with a chronic invisible illness is hard, living with it alone is impossible.
Thank you to those who stick by that person and are there no matter what, no matter how tired you are or how stressed you are, you still manage to do all this and not make that person feel isolated or make them feel like a burden.
Words alone can’t say how much that person is grateful for having you, just know they love you, appreciate you and wouldn’t be here without you.