Hi my name is Jodie and this will be my first "blog" entry on my website.. I do have Vlogs on Youtube which you can find at "jodiepixie1991" on youtube.
Today I thought to myself that the world throws unbelievable shit at individuals and thought how cruel it is that it could do this..but then I stopped..and thought..maybe just maybe the people who have been handed the "shit hand" and been given these hard tasks such as illnesses and disabilities were given them because they are strong people, determined people at that.
I came up with a new theory which is all totally mine! and have not stole from anywhere! yes I came up with it..even with my brain fog :D
my new theory... My illnesses are Trees every symptom and new illness is a branch.
I can never cut these branches away, they grow out of control and block my light.
Tree's grow and so do my illnesses...but there are other Trees around me..in fact a whole forest...so there fore I am NOT alone!
Another... Doctors are like birds..they always fly and land on you...most of them shit on you and leave, some peck away at you leaving huge dents in your bark, most fly in then fly away again...but others make a home on your tree and sing the song you long to hear..the song of "acceptance" "possibility" "loyalty" and most of all "to be believed"
I thought how appropriate this theory was because for me and many other POTS sufferers out there I know feel this is true to them. We al go through the task of trying to find that one doctor (many never find the one) who will accept them and appreciate that they in fact ARE ill and actually want to help. We all go through the pain staking tasks of explaining ourselves over and over again to people we meet and even to doctors to try and educate them about our illness..We all try our hardest to live our lives as normal as we can whilst our light is being blocked by our over growing branches and when we can no longer see we feel there is no point..but then that one doctor comes..and starts you on the path of trying to improve your symptoms with medications your branches thin down a little and you begin to see your light again..we all have found others.."our forest" sufferers of invisible illnesses and feel comfort in the fact we are NOT alone.We are human and we ARE ill. when people say "you don't look sick" that there that person saying that comment has shown their great ignorance. just think...does a person have to be sat in a pool of their own dribble to be ill? does that person need to be "limb less" to be ill? does that person need to have severe speech impairment to be ill?...a person does NOT need to LOOK ill to be ill. being sick is not just about physical appearance, but it IS about the INSIDES.. do these people ever stop to think that the vital organs of the human body are INSIDE the body?...this is where things go wrong..this is were illnesses stem from and this is why our illness is HIDDEN! it is hidden inside out bodies. it is our autonomic nervous system that has failed us and this you cannot see from the smiles we paint on our faces. this you could only witness if either you ARE this person..or you are this person's loved ones..who witness the pain and the suffering 24/7. the struggles of daily activities such as changing clothes or even brushing your own teeth are struggles for some of us on our bad days. some are bed bound from severe fatigue or nausea or syncope or migraines that knock us out for days.ignorant
think to yourselves..this person you say does not "look sick" may actually BE SICK..they are someone's loved one they are some one's best friend they are some one's entire world.
Today I thought to myself that the world throws unbelievable shit at individuals and thought how cruel it is that it could do this..but then I stopped..and thought..maybe just maybe the people who have been handed the "shit hand" and been given these hard tasks such as illnesses and disabilities were given them because they are strong people, determined people at that.
I came up with a new theory which is all totally mine! and have not stole from anywhere! yes I came up with it..even with my brain fog :D
my new theory... My illnesses are Trees every symptom and new illness is a branch.
I can never cut these branches away, they grow out of control and block my light.
Tree's grow and so do my illnesses...but there are other Trees around me..in fact a whole forest...so there fore I am NOT alone!
Another... Doctors are like birds..they always fly and land on you...most of them shit on you and leave, some peck away at you leaving huge dents in your bark, most fly in then fly away again...but others make a home on your tree and sing the song you long to hear..the song of "acceptance" "possibility" "loyalty" and most of all "to be believed"
I thought how appropriate this theory was because for me and many other POTS sufferers out there I know feel this is true to them. We al go through the task of trying to find that one doctor (many never find the one) who will accept them and appreciate that they in fact ARE ill and actually want to help. We all go through the pain staking tasks of explaining ourselves over and over again to people we meet and even to doctors to try and educate them about our illness..We all try our hardest to live our lives as normal as we can whilst our light is being blocked by our over growing branches and when we can no longer see we feel there is no point..but then that one doctor comes..and starts you on the path of trying to improve your symptoms with medications your branches thin down a little and you begin to see your light again..we all have found others.."our forest" sufferers of invisible illnesses and feel comfort in the fact we are NOT alone.We are human and we ARE ill. when people say "you don't look sick" that there that person saying that comment has shown their great ignorance. just think...does a person have to be sat in a pool of their own dribble to be ill? does that person need to be "limb less" to be ill? does that person need to have severe speech impairment to be ill?...a person does NOT need to LOOK ill to be ill. being sick is not just about physical appearance, but it IS about the INSIDES.. do these people ever stop to think that the vital organs of the human body are INSIDE the body?...this is where things go wrong..this is were illnesses stem from and this is why our illness is HIDDEN! it is hidden inside out bodies. it is our autonomic nervous system that has failed us and this you cannot see from the smiles we paint on our faces. this you could only witness if either you ARE this person..or you are this person's loved ones..who witness the pain and the suffering 24/7. the struggles of daily activities such as changing clothes or even brushing your own teeth are struggles for some of us on our bad days. some are bed bound from severe fatigue or nausea or syncope or migraines that knock us out for days.ignorant
think to yourselves..this person you say does not "look sick" may actually BE SICK..they are someone's loved one they are some one's best friend they are some one's entire world.